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The Pancreatic Exocrine Insufficiency Questionnaire (PEI-Q) is an 18-item Patient-Reported Outcome questionnaire designed to be completed by patients with pancreatic exocrine insufficiency (PEI) to assess their PEI symptoms and associated impact on health-related quality of life. A Patient-Reported Outcome is any report of the status of a patient’s health condition that comes directly from the patient, without interpretation by a clinician or anyone else.
Currently there are no known Patient-Reported Outcome questionnaires that are specific to PEI. Due to the subjective nature of PEI symptoms (e.g. pain), they are best measured via patient self-report. A Patient-Reported Outcome questionnaire can be utilized in routine clinical practice to guide treatment decisions and monitor patients’ symptom severity, thus helping ensure patients’ symptoms are adequately controlled and aid patient-clinician communication.
The purpose of this questionnaire is to quantify and potentially track changes in PEI symptoms and associated impact on health-related quality of life. In doing so, this questionnaire aims to:
Of note, this questionnaire is designed to complement and improve current best practice and inform discussions around treatment rather than replace standard clinical methods of diagnosing PEI and assessing PEI symptoms.
PEI-Q USER MANUAL